Monday, March 8, 2010

Quicky post because we just got home a little while ago and we are all beat...but it was a great appointment. It was so wonderful to see Dr. C again...I just love that man. Plus we got to see him at the Southfield office which is AMAZING...quiet, easy to get in and out of, just all around better than the main hospital.

The final EEG report showed no spiking or seizures when she is awake. However...when she is asleep there is "intermittent spiking in the centroparietal area". Dr. C said that is probably coming from the motor strip where we did the MST. He wasn't overly concerned. Ideally we would have no spiking at all but he said that it's quite possible that over time the spiking will go away because it has nowhere to go now. I was concerned that we wouldn't want to wean her Vigabatrin after that, but surprisingly he said let's do it. That she is not at risk for infantile spasms anymore and the Trileptal should be appropriate for controling the spiking. So we are going down in 250mg increments every 3 weeks or so (I may stretch it out to every 4 superstitiously.) If we see any weird behavior, call him, but otherwise do a repeat EEG after the wean to see how things are and go from there. Other than that he said she looks great and to push the speech therapy, which, you know, duh. :)

So glad to be home and have that behind us for now!

4 comments:

Sophie's Story by Elaine said...

That is WONDERFUL news!!! I know how much you will be on edge with this wean but it will be exciting to see what happens with her development especially with how well she did with the slight decrease a few months ago.

Sinead said...

Great news. It will be nice to be on just one drug. She is doing so well.

JSmith5780 said...

Wonderful!

baby trevor's mommy said...

That's exactly how Trevy's EEG is presenting now. Does my heart good to hear Dr. C's take on it. And has me wondering how he'd feel about weaning Trevy's Topomax? Hmmmmm...

Happy you're home, hon!

xoxo

...danielle