This is not a fun post to write. Today has not been a fun day. All those prayers for seizures? Well, please send some up for seizures to stop. She was started on IV Dilantin this morning but it doesn't seem to be working very well. This afternoon she has had long clusters (we're talking 40-50 minutes) of spasms that are not severe but upset her a lot. They've tried giving her Ativan, Versed, she's had her morphine and tylenol, but none of it is helping her to be comfortable or to sleep more than a few minutes at a time. We saw someone from neurosurgery and they said this is not uncommon but man, it is very upsetting for all of us. The worst is that she will not stop thrashing around in her bed. She keeps getting tangled up in all of the wires attached to her, and the worst was when she got a good tug on the wires coming out of the back of her head. That has always been Michael's greatest fear, that she would somehow damage her brain by doing that, and while no one seems to think it's possible that she hurt anything that seed has now been planted in my head.
Tuesday seems eons away. I'm hoping that tomorrow when everyone is back in the hospital we can get some reassurance that everything is okay for now. Weekends in the hospital are just awful when you want to get answers, no one is here.
I am not a crier in the hospital but my voice sure has been wavery today. I appreciate phone calls most of the time but I'm just not in the mood to talk right now. This stuff is just hard and there's nothing else to do but get through it. We just have to get through the hours until surgery.