Monday, September 21, 2009

It's a go

Dr. Sood came and met with us after the conference and he is in full agreement with Dr. Chugani. So surgery is tomorrow at 8:30am. It will last 6-8 hours. We are ready and feel really good about things, which is funny in a way since this isn't the ideal scenario we were hoping for. But it's not the worst either and I just have a strong feeling this is the right thing for Julia.

Julia's sleeping a lot and having a much better day than yesterday. No more procedures on her (that I know of anyway) so it's just a matter of keeping her comfortable until tomorrow.
Barring any major happenings this is probably the last update for the day. Expect lots of surgery updates tomorrow.

8 comments:

Tara said...

Lisa,
I am truly amazed by you and your little girl. I just don't have the words right now to explain how brave you and your family is. Please take care and our prayers are on the way!

Anita said...

Hi Lisa,
Still praying for u guys.Thanks for updating us.How old is Julia?
I know u mentioned about the auditory and visual language mapping.Kanak had it too.It was fun for her even with the leads on.

And substituting K for L in my previous post.....a mistake.I am sure u already overlooked it.

Anita

Sophie's Story by Elaine said...

You sound like you are in better spirits...at peace. It is so great to read that Julia is doing better.

It is a bit more than what you were expecting but, as you said, it is not the worst. And you definitely don't want to go through this again. They removed the frontal, temporal, parietal and occipital cortexes on the left hemisphere on Sophie. The motor cortex was up for debate. There was a possibility that they would have to remove it. Made surgery day a bit more intense until they came in and told us that they wouldn't have to touch it. What a relief!!!

Did they say for sure that they would have to do the MST or is it a matter of making the decision in the OR?

I hope things continue to go well today and tonight. Sending positive thoughts and big hugs your way.

baby trevor's mommy said...

It's one of those unexplainable things. The kind you don't like to say outloud...just in case...

But I know what you mean. Even though Trevy was seizure free for a time on ACTH...in my gut I just knew it wasn't over. And somehow I just felt like we could be headed towards surgery someday. Even the way things have opened for us to be in Detroit...instead of Boston Children's which makes more sense...helps me feel like this is Supposed to happen.

Anyway...

Thank you for the email...so sweet...

We'll be praying hard for you guys...

...danielle

blogzilly said...

Still thinking about you guys all the time and hoping for the best. I just was able to get on and I think I need to go back a post or two to get the skinny, but if Elaine's post is any indication it sounds hopeful. A very trusted source of info, she is. :)

Mel said...

Many prayers and good thoughts headed that way tomorrow. Thanks for keeping us posted. ((hugs))

Melissa

Jackson's Blog said...

Glad everything is all set for tomorrow and you're feeling good about things! We were in the same boat. Jackson had his PTO areas removed on his right side and the MST procedure. He had no weakness after surgery and was moving his left hand immediately. We will be praying for Julia and hope everything goes smoothly tomorrow!!! Hope you all are resting peacefully tonight!

Helen said...

Our family is praying for the hands of the doctors to be blessed today that they have the knowledge and wisdom necessary to eliminate Julia's seizures so she may lead a life without seizures. We pray for Julia's peaceful rest and healing. We pray for strength for Michael and Lisa to endure this journey.
We love all of you. Give JuJu and puppy a hug.