It's 3am. I got some sleep from about 10-2 and then came back to the PICU to relieve Michael. Julia's doing well...so far no seizures. She has never really had seizures after coming out of anesthesia and hasn't had any deep sleep yet which is usually what triggers them. She's still off all anti-epileptic drugs so I'm sure by later today we'll see something.
She's been running fever and the nurses say that can be normal. Tylenol has been helping to bring it down but it hasn't gone completely away. Her blood pressure, urine output, breathing and ICP (intra-cranial pressure) are all good so they're not worried about the fever at this point. She is not happy...and it's very hard to see her like this and know that we've got at least 7 more days of it. I have to keep reminding myself why we are doing this because it's easy to forget when all you want to do is scoop her up and take her home. She likes to hold my hand and have me right beside her which I'm happy to do.
We should be out of PICU by noon tomorrow and in a regular room. Will update then!