We wanted seizures...and that's what we got. I got a nice chunk of sleep from 8:30-2, came back to the hospital, and as I walked down the hall towards Julia's room I saw people going in talking about "grids" and "seizures". My heart jumped in my throat with equal parts hopefulness and dread....this was it. I entered the room to see the tail end of a cluster, and what a cluster it apparently was. Michael said he had a very hard time keeping her restrained enough that she didn't hurt herself or any of the monitoring equipment. The cluster lasted a good 15 or 20 minutes and was typical of her normal seizures (except more severe), which is all good and exactly what we wanted to see.
Her poor face is so much more swollen than it was when I left her at 8pm. Both eyes are almost completely closed and it's heartbreaking to see her like that. She's still just as sweet and happy as ever and it doesn't seem to bother her very much. I don't even think I'm going to post a picture of it (don't want to upset the grandmothers, you know). Everyone assures us it's very normal and to be expected.
So apparently they want her to have at least a few more seizures and a chance to review the data before any meds will be started. She'll get Versed if she has another monster cluster but other than that we wait until morning and for neurosurgery to take a look at everything.
I've been spending some time tonight reading once again through Sophie's story for inspiration, strength, guidance...the usual. Tonight I found a nuggest that made me smile... we are in the same room, 586, that she was at this stage in the game. Just a little detail but kind of neat.