- Julia began running fever early Monday morning and we've been treating it with Tylenol. No one is concerned at all, her blood work, cultures, and incisions are all normal so it's not related to infection. Fever can happen after major surgery or it could be a response to the antibiotic. I still don't like it but I realize it's not anything to worry about.
- Last night she began having some major muscle twitching and spasming. Again, no one thinks it's seizure related. Dr. Chugani this morning thinks it's a reaction to medication and he's stopping her Dilantin effective immediately since we've started her on Trileptal.
- Last night we were also able to get her to eat more, she had a few bites of green beans, mac and cheese, french fries and yogurt. It's a great start!
- She is also seeming much more herself, her language is improving steadily, which is the biggest boost of all to my improved mood.
Dr. Chugani wants to get us home within a few days, he feels she will recover best at home and we couldn't agree more. He reminded us today that she had major surgery...the recovery takes time and he said he's seen all kinds of behavior that can't be explained but is all temporary.
Thank you for the wonderful comments and emails after yesterday's post. It felt good to get those feelings out and it felt great to hear all the love and support from everyone.