The surgical conference isn't due to meet until 11:30 but Dr. Chugani and Dr. Asano just paid us a visit with their findings. The areas involved are her temporal, occipital and parietal lobes. This is the bulk of the nastiness that is causing her seizures. Her frontal lobe is normal which we were really pleased to hear. Unfortunately, part of her motor cortex has spiking too. Ideally you would want it not to be involved at all, because if any of that has to be removed it can cause permanent deficits on her right side. However, there is a procedure called MST (multiple subplial transection) that can preserve the motor function while suppressing the spiking that can cause seizures. In this procedure they make small vertical slices through the nerve fibers. Dr. Chugani said this procedure is not guaranteed...she could still have some spiking that would cause seizures. But it's a nice balance between being conservative and liberal and if there is any spiking it should be able to be controlled with medication.
He said if it was his child this is the route he would want to take. That speaks volumes and we agreed that this is the route to go. The other option would be to entirely remove the motor cortex...this would ensure seizure control but would leave her with a limp and a useless right hand. There is no way we can choose that option at this point.
With this option we do run the risk of having to repeat the surgery at some point when she's older. But Dr. Chugani feels this will get us through the critical early years when cognitive development is so important and that removing the three lobes previously mentioned will improve that. And hopefully that won't even be an issue and this surgery will take care of things. It's a bit of a gamble but one we're willing to take. In his words, at least we will know we gave her every shot to have full motor function.
The conference still has to take place and Dr. Sood needs to be in agreement before any of this is a go so we'll get confirmation later this afternoon but most likely this will be the plan. Keep those prayers coming!