Friday, September 18, 2009

Dr. Sood spoke with us a few minutes ago and said that the initial data looks as if the focus is the left temporal lobe. We are so hopeful that this will be the case. Now we are just waiting for a nurse to come and get us when it's time to see her. At least we think that's what we're waiting for...we were both so relieved and focused on the good news that everything was done that we didn't quite catch the part about what to do next. So we're just sitting tight until further notice...

To give some more detail on Dr. Asano...he's the guy who will be doing the motor and sensory mapping as well as coming up with different surgical plans in case plan A is not able to be carried out. She will be off medication for the rest of the day so that as many seizures as possible can be recorded, then Dilantin will be administered starting tomorrow through her IV. We will also reintroduce Vigabatrin but if she's not able to tolerate taking that orally she will have the IV Dilantin as a backup. They will then discuss the data in Monday's surgical conference and decide what should be removed.

7 comments:

Mel said...

Praying for her! Let us know if you need anything!!

Laura said...

Love you guys!

Dora's Daddy said...

My wife and I will stop right now and offer a prayer for you all. Blessings to you and your daughter!

lisa said...

I am praying for your family and send ggod thoughts. I recently started following Bennett and now Julia as I am a friend of Trevor's mom Danielle. Best of luck

blogzilly said...

That all sounds very good. So this was a grid placement surgery then, is that correct? Now they will monitor and make determinations as to gaining info on focus and making decisions on areas of resection?

blogzilly said...

Oh and Elaine mentioned this a little before but just so it is said again, try not to worry much when you see her for the first time, she might be very pale, but that is perfectly natural. The color comes back fast.

Wow, it seems like a year ago but also yesterday that I was exactly where you are mentally. But I was lucky, we didn't do grids we were dealing with a tumor and they knew what they were taking out before the did the first surgery, Elaine has way more experience with the grids.

Mom said...

Hi guys,
So excited to hear the little angel is out of the first surgery. It was so difficult to sleep last night thinking about her. Daniel (aka little man) is doing great. He is playing peek a boo today by covering his eyes and laughing heartily. I am sure he misses you, but he's having fun.
Love
Mom